InsideGov
Congress · Laws

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Public Law 113-166 · H.R. 594 · 113th Congress · began in the House

Signed by Barack Obama (D) on Sep 26, 2014 · Health

Sponsor: Rep. Michael Burgess (R-TX-26)

Cosponsors (113): Rep. Eliot Engel,

Passage votes

  • HouseVoice vote
  • SenateUnanimous consent
Data notes

The final version of the law, as each chamber passed it. A chamber that passed it by voice vote or unanimous consent has no count. “Method not stated” means the record does not say how the chamber voted. Where the record has a member-by-member vote, the “Who voted for it” section shows who voted yea.

Report a correction

Summary

The Congressional Research Service’s plain-language summary of what the law does.

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH).

Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers.

Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living.

Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy.

(Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner.

(Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.

Committees

The committees the bill was sent to, and what each did with it.

Data notes

A committee links to its page only where it exists in the current Congress; older and renamed committees are named without a link.

Report a correction

Related bills

1 bill the Library of Congress relates to this one.

  • S. 315Related bill

    Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Data notes

Related bills are identified by the Congressional Research Service, the House and the Senate: companion and identical bills, bills with similar text, bills that were folded into this law, and rules that brought it to the floor. A bill that is itself a public law in this site’s data links here; the others link to Congress.gov.

Report a correction

Timeline

From introduction to signing, newest first: the committees, the floor and the president. 24 actions.

  1. Sep 26, 2014Became lawBecame law · Became Public Law No: 113-166.
  2. Became lawBecame law · Signed by President.
  3. Sep 23, 2014FloorFloor · Presented to President.
  4. Sep 19, 2014FloorFloor · Message on Senate action sent to the House.
  5. Sep 18, 2014FloorFloor · Passed Senate without amendment by Unanimous Consent.
  6. Aug 1, 2014CalendarCalendar · Read twice. Placed on Senate Legislative Calendar under General Orders. Calendar No. 529.
  7. Jul 29, 2014CommitteeCommittee · Received in the Senate.
  8. Jul 28, 2014FloorFloor · The Speaker announced the title of H.R. 594 was amended in the form at the desk. Agreed to without objection.
  9. FloorFloor · The title of the measure was amended. Agreed to without objection.
  10. FloorFloor · Motion to reconsider laid on the table Agreed to without objection.
  11. FloorFloor · On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.
  12. FloorFloor · DEBATE - The House proceeded with forty minutes of debate on H.R. 594.
  13. FloorFloor · Considered under suspension of the rules.
  14. FloorFloor · Mr. Burgess moved to suspend the rules and pass the bill, as amended.
  15. Jul 24, 2014CalendarCalendar · Placed on the Union Calendar, Calendar No. 416.
  16. CommitteeCommittee · Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-556.
  17. Jul 15, 2014CommitteeCommittee · Ordered to be Reported (Amended) by Voice Vote.
  18. CommitteeCommittee · Committee Consideration and Mark-up Session Held.
  19. Jul 14, 2014CommitteeCommittee · Committee Consideration and Mark-up Session Held.
  20. Jun 19, 2014CommitteeCommittee · Forwarded by Subcommittee to Full Committee (Amended) by Unanimous Consent .
  21. CommitteeCommittee · Subcommittee Consideration and Mark-up Session Held.
  22. Feb 8, 2013CommitteeCommittee · Referred to the Subcommittee on Health.
  23. CommitteeCommittee · Referred to the House Committee on Energy and Commerce.
  24. IntroducedIntroduced · Introduced in House
Data notes

Every action the Library of Congress lists for the bill, from introduction to signing, plus the dated committee hearings. The source lists many steps twice (the chamber’s own entry and the Library of Congress copy, or a presidential and a became-law entry with the same words); those are shown once. Amendments are listed in their own section.

Report a correction

Amendments

No amendments to this bill are on record.

Data notes

Amendments offered to this bill in either chamber, as the Library of Congress records them: each with a status read from its last recorded step: agreed to, rejected, withdrawn, ruled out of order, fell with another amendment, or offered with no vote recorded (most Senate amendments are only ever offered). The wording of each amendment is the source’s. Amendments to amendments and amendments to other bills are not listed.

Report a correction

Official record

The bill’s full text is on Congress.gov. Data through Oct 7, 2026.